This past weekend, Team Methuen Village rode to great lengths in the Memory Ride to raise funds that will further research towards better treatment and a cure for Alzheimer’s disease. An annual event, Memory Ride supports the work of the Alzheimer’s Association, the largest private funder of Alzheimer’s disease research in the country.

Heather Carroll, Compass Program Director for Methuen Village managed the “chase truck” for the four bicycle riders of Team Methuen Village on the 100 mile course, beginning and ending at Fort Devins in Massachusetts.

Not slowed by the thunder, lightening, or excessive rain, Team Methuen Village finished the race with smiles on their face, just under $4000 in funds raised for research and hopes for another smooth ride next year and further strides in the fight against Alzheimer’s disease.

This week, Senior Living Residences was a proud sponsor of the Alzheimer Association’s Map thru the Maze conference, the largest education conference for Alzheimer’s disease professionals in the area. By contributing time and resources to the Association and supporting their mission, Senior Living Residences is able to reach beyond its own communities’ doors to assist in the greater goal of education and support for people working with and living with this disease.

NAPA approved by congress

Congress recently sent a bill to the President’s desk that would significantly impact the future wellbeing of our nation’s aging population. The National Alzheimer’s Project Act (NAPA), a bipartisan bill, aims to combat Alzheimer’s with the same determination with which we have worked to prevent and treat AIDS and cancer. If enacted as expected, the main goals of the bill will be to:

• Launch a campaign within the federal government to overcome Alzheimer’s disease.
• Establish an inter-agency Advisory Council to develop with the Secretary of Health and Human Services a coordinated National Alzheimer’s Disease Plan.
• Comprehensively address the federal government’s efforts on Alzheimer’s research, care, institutional services, and home- and community-based programs.
• Accelerate the development of treatments that would prevent, halt, or reverse the course of Alzheimer’s disease.
• Decrease health disparities by ensuring ethnic and racial populations at higher risk for Alzheimer’s receive much-needed care and services.

(courtesy of Emaxhealth.com)

As compared with the AIDS and cancer federal agendas, combating Alzheimer’s is unique in that there are NO survivors. It is up to advocacy organizations, such as the Alzheimer’s Association, to organize caregivers, eldercare professionals, and those with Alzheimer’s that can tell their story, to provide valuable information and feedback to this new federal office. Follow this blog and Alzheimer’s-related websites such as the Alzheimer’s Association’s website www.alz.org, to learn of opportunities to contribute to this cause.

 Raising awareness about Alzheimer’s disease today is essential. In the United States, more than 5 million Americans are living with the disease and the number is only expected to grow in the coming years. Awareness about this disease will lead to increased programs for patients and caregivers as well as the vital funds for research into improved diagnosis and treatment options.

There are many good resources for learning about and gaining support when dealing with Alzheimer’s disease, here are a few that I like particularly:

• Alzheimer’s Disease Education and Referral Center-with online resources and materials that can be ordered for reading and sharing.
• Alzheimer’s Association-online information, brochures, and Helpline services at 1-800-272-3900.
• National Institute of Health Clinical Trials-website with information about actively recruiting studies for research about Alzheimer’s disease.

Please visit these sites and let me know what you think of them.

This year, the event’s 20th anniversary, Reisa Sperling, MD, MMSc will present information about Preymptomatic Diagnosis of Alzheimer’s disease. Dr. Sperling will present information about the ‘preclinical phase’ of Alzheimer’s disease, a time period when brain changes may occur prior to a clinical diagnosis of the disease. Though more research is needed, it is believed that the utilization of disease-modifying treatments during this “preclinical” time period would be most effective.

Dr. Sperling is an Associate Professor of Neurology at Harvard Medical School. She is also the Director of the Center for Alzheimer Research and Treatment at Brigham and Women’s Hospital and Massachusetts General Hospital. Her work was featured in the Emmy-award winning HBO documentary, “The Alzheimer’s Project”.

The Simon’s Symposium will be held at the Westin-Waltham hotel on Wednesday, October 27 at 7pm. The event is free and open to the public.

• Is your loved one able to keep the house and yard as clean as before? Do you notice laundry piling up? Do the floors, furniture and bathrooms need to be cleaned?
• Is your loved one able to retain personal cleanliness? Can your Mom or Dad shower and bathe regularly without help? Has personal hygiene changed?
• Has your loved one fallen behind on bills? Is old mail piling up? Do you notice clutter that was never there before?
• Is your Mom or Dad able to manage their medical care, schedule and remember regular appointments? Can they explain and follow through with medical recommendations?
• Are medications in order? Do you know if your Mom or Dad is taking his or her medications as prescribed? Can they name their medications and their use?
• Has your loved one been repeating themselves?
• Does your loved one interact in a socially appropriate manner for light conversation, and yet if the conversation becomes more complex, they do not follow or respond appropriately?
• If you have one parent that you are worried about, does the other parent often answer for them?
• Does your loved one frequently misplace items? Do you ever find items in an unexpected place?
• Is your loved one still cooking proper nutritious meals every day? Is he or she maintaining a healthy weight and getting some form of exercise?
• Do you worry about your loved one’s safety when alone and cooking?
• What is the condition of the items in the refrigerator? Are food items adequate in supply and not expired by date or appearance?
• Has your Mom or Dad lost interest in day to day activities and social activities? Does your loved one make excuses why they don’t participate with friends or engage in social events or church activities?
• Do you think your loved one feels isolated or lonely?
• Does your loved one forget your recent visits or calls?
• Does your loved one seem to be withdrawn, fearful or depressed? Has his or her manner or character changed?
• Has your loved one’s driving ability diminished? Have you questioned if they should still be driving? Has your loved one become lost while driving a familiar route?
• Has your loved one experienced a crisis situation recently such as a hospitalization or an episode of wandering away from home and not remembering how to get back?
• Does your loved one deny any problems or refuse to discuss the situation, even though you may have answered “yes” to several of the above items?

It is estimated that over 65% of those with dementia will wander at some point, so it is critical for caregivers to monitor their loved ones and be alert for any signs of wandering (see below). However, it is often difficult to balance one’s need for a degree of personal freedom with the necessity of protecting him or her from the dangers of wandering. When a person with Alzheimer’s disease does begin to wander, it is important to recognize the confusion and help him or her refocus on real-life tasks.

According to the Alzheimer’s Association, a person may be at risk for wandering if he or she:

• Returns from a regular walk or drive later than usual
• Tries to fulfill former obligations, such as going to work
• Tries or wants to “go home” even when at home
• Is restless, paces or makes repetitive movements
• Has difficulty locating familiar places like the bathroom, bedroom or dining room
• Checks the whereabouts of familiar people
• Acts as if doing a hobby or chore, but nothing gets done
• Appears lost in a new or changed environment

The Alzheimer’s Association also provides a list of tips to aid those with Alzheimer’s who are susceptible to wandering and their caregivers:

• Encourage movement and exercise to reduce anxiety, agitation and restlessness
• Ensure all basic needs are met (toileting, nutrition, thirst)
• Involve the person in daily activities, such as folding laundry or preparing dinner
• Place color-matching cloth over doorknobs to camouflage
• Redirect pacing or restless behavior
• Place a mirror near doorways. The reflection of a person’s own face will often stop him or her from exiting the door.
• Reassure the person if he or she feels lost, abandoned or disoriented .
• Enroll the person in MedicAlert + Safe Return.
• Inform your neighbors and local emergency responders of the person’s condition and keep a list of their names and telephone numbers.
• Keep your home safe and secure by installing deadbolt or slide-bolt locks on exterior doors and limiting access to potentially dangerous areas.
• Never lock the person with dementia in a home without supervision.
• Be aware that the person may not only wander by foot but also by car or other modes of transportation.

MedicAlert and Safe Return:

Keep your loved one safe by knowing the risk factors for wandering and enrolling in MedicAlert® + Alzheimer’s Association Safe Return®, the Alzheimer’s Association’s 24-hour nationwide emergency response service for individuals with Alzheimer’s or related dementia that wander or who have a medical emergency.

More information

Wandering – Preparing For and Preventing It (2 pages)
Wandering: Who’s at Risk? (2 pages)

Those with memory loss live in a different reality from our fast paced, noisy lives. Theirs is slow, quiet, and based in the remote past which is a predictable place in its familiarity of people and routines. They cannot sustain staying in the present; it is too difficult and confusing. Retreat into the past with your loved one and you will have a better than good visit!

• Plan a time limit on your visit that you are comfortable with – as few as 15 to 20 minutes can make for a good visit.
• Slow down your pace and your mind before entering your loved one’s space.
• If possible, turn off background noises, such as the TV and music, when having a conversation.
• Identify yourself each time. If he or she doesn’t know who you are, introduce yourself by your first name, “Hi Mom. Brad, your son, is here to spend some time with you.” It may take a full minute for your loved one to orient to you being there and to recognize who you are.
• Address one topic at a time. Don’t jump from subject to subject, especially in mid-sentence. Processing information is slowed in the brain of a person with Alzheimer’s. Sometimes it takes a full minute or longer for the brain to accept a message, make some sense of it, and formulate a response.
• Plan a task to be accomplished while you’re there, such as a short walk with easy, slow talk (you’ll probably carry most of the conversation), reading a story, listening to music together, or giving your mom a manicure.
• Communicate positive feelings through quiet hand holding, a light back rub, or a hand resting on the back or forearm. Always approach your loved one from the front before touching so he or she isn’t startled.
• Talk slowly and simply. Avoid complex concepts and repeat information as necessary to be clear.
• Avoid arguing with your loved one’s perceptions of things and don’t correct your loved one when he or she is wrong. Sometimes saying nothing works best. You always lose an argument with a confused person!
• Avoid long explanations, e.g., why your loved one must do something.
• Enjoy being in his or her world. Do not reality-orient or correct his or her memories or perceptions of things.
• Avoid questioning and quizzing. Avoid questions asking what, who, when, and especially why. Questions that can be answered “yes” and “no” are best.
• When asking a person with dementia to make a decision, offer only two choices, either of which is acceptable. More than that is too much for the brain to deal with now. For example, “Do you want to walk with me now, or talk together first?”
• Know that your presence alone brings peace and comfort to your loved one!

Relating to those with memory loss can often be challenging. It’s helpful to keep in mind that their behavior is their way of staying in touch with what is going on to feel in control of their lives. We understand that. The personal caregivers and Social Program Directors in our Memory Support Neighborhoods are trained in the habilitation method of memory care with a focus on maximizing the independence of each resident, as well as creating positive emotional experiences using all of the techniques and tips outlined here.

TIPS COMPLIMENTS OF

Beverly Moore, RN CS, Alzheimer Coaching Services, 617-233-1145

Living in silent anxiety, these seniors are often mistakenly viewed as being able to maintain their daily needs at home alone. Additionally, many individuals with mild memory loss live in “traditional” assisted living and senior housing communities yet are not receiving specialized memory care. In Massachusetts, for example, almost 30% of seniors living in “traditional” assisted living apartments have a medical diagnosis of Alzheimer’s or related dementia.*

In reality, without specialized treatment for the symptoms of their memory loss, anxiety increases and cognitive function declines more rapidly. Often, individuals suffer from increased isolation and depression.

How do you recognize someone who might have MCI? Look for these early symptoms:

• Forgetting to take medications as prescribed by the physician
• Difficulty maintaining a proper nutritionally balanced diet
• Increased difficulty with executive functioning, which includes losing or forgetting to pay bills, not being able to balance the checkbook, missing appointments, difficulty with decision making, and poor judgment in emergency situations
• Forgetting names and places and getting names of relatives confused (such as mixing up mothers and daughters)
• Increased anxiety
• Losing short-term memory, which often is noticed by repetitious stories

Senior Living Residences’ communities provide a supportive nurturing environment for individuals experiencing a wide range of memory issues with programming that actually treats the symptoms of their memory loss. Our innovative and extensive treatment program includes a specialized brain-healthy diet, a curriculum-based learning program designed specifically for individuals with memory loss, extensive staff training and resident case review by a Boston University School of Medicine Alzheimer’s clinician, and more.

The latest research is suggesting that treatment interventions, such as ours, may actually slow the progression of Alzheimer’s disease, minimizing the cognitive decline of seniors.

*According to Massachusetts Executive Office of Elder Affairs 2008 data, almost 30% of seniors living in “traditional” assisted living apartments in our state have a medical diagnosis of Alzheimer’s or related dementia. EOEA, 2008 Annual Report, Assisted Living Resident Aggregate Information